Can I Put My Autistic Child Into Care?

Considering residential care for your autistic child? Explore legal considerations, care options, and the financial and emotional impact.

July 28, 2024

Understanding Autism Care

When it comes to providing care for children with autism, it's important to have a comprehensive understanding of the condition and the support available. This section will explore the prevalence of autism and the associated healthcare costs and support options.

Prevalence of Autism

The prevalence of autism has been steadily increasing in recent years. In the United States, the prevalence of autism has nearly tripled from 1 in 150 children in the year 2000 to 1 in 54 children in 2016, as reported by Apex ABA. This rise in prevalence has led to increased awareness and the development of support services for individuals with autism and their families.

Healthcare Costs and Support

Providing appropriate care and support for a child with autism can come with significant financial implications. Studies have shown that children with autism spectrum disorder (ASD) and intellectual disability have healthcare costs 2.7 times higher than children with ASD but no co-occurring condition. The annual healthcare costs for children with ASD are reported to be more than four times higher than those without ASD, with costs of $14,061 compared to $3,020.

To assist families in managing these costs, various support options are available. Medicaid, for example, offers higher total healthcare costs, higher ASD-specific costs, and coverage for more therapy visits for children with ASD compared to private insurance plans [1]. Additionally, there are organizations and programs that provide financial assistance for autism, helping families access the necessary resources for their child's care.

It's important for families to understand the financial considerations associated with caring for a child with autism. The lifetime cost of financially supporting someone on the autism spectrum is approximately $1.4 million, which increases to $2.3 million if the individual also has an intellectual challenge. Planning for these expenses is essential to ensure that the child receives the necessary care and resources.

By understanding the prevalence of autism and the associated healthcare costs and support options, families can make informed decisions regarding the care and well-being of their child. It's important to explore available resources and seek guidance from professionals and autism organizations to ensure that the child's needs are met effectively.

Legal Considerations

When considering options for your autistic child's care, it's important to be aware of the legal considerations surrounding their rights and equal access to childcare. Childcare centers must comply with Title III of the Americans with Disabilities Act (ADA), which prohibits discrimination against individuals with disabilities, including those on the autism spectrum. As a result, childcare centers cannot refuse care to a child solely based on their autism diagnosis [1].

ADA Compliance in Childcare

Childcare providers are required to provide equal opportunities for participation to children and parents with disabilities. This means that reasonable modifications and accommodations should be made to ensure equal access and participation in programs and services. Childcare centers, regardless of their size or number of employees, must comply with Title III of the ADA. They are prohibited from discriminating against individuals with disabilities and must provide accommodations if the child poses no direct threat to others.

Equal Opportunity for Participation

In addition to ADA compliance, childcare providers should offer equal opportunities for participation to children with disabilities. This includes ensuring that children with autism have the same opportunities to engage in activities and programs as their neurotypical peers. Reasonable modifications and accommodations should be made to support their inclusion and ensure a positive and supportive environment for their growth and development.

By understanding the legal considerations surrounding autism care, parents can advocate for their child's rights and ensure they receive the necessary support and accommodations. It's important to communicate with childcare providers and discuss your child's specific needs to ensure their inclusion and access to appropriate care options.

Care Options for Autistic Children

When considering the care and support for an autistic child, it's important to explore different options and find the one that best meets their unique needs. Here are three common care options for autistic children: in-home care, public school programs, and private school programs.

In-Home Care

In-home care is a popular choice for many families with autistic children, offering several advantages for both the child and the parents. In-home care provides increased comfort and reduced anxiety for children with autism, as they can receive care and therapy in a familiar environment. It allows for personalized attention and the opportunity for family involvement and collaboration in therapy and support.

When opting for in-home care, families can hire caregivers, therapists, or even au pairs who are trained in working with autistic children. These professionals can provide a range of services, including behavior management, social skills training, and educational support. In-home care allows for flexibility in scheduling and tailoring interventions to meet the specific needs of the child.

Public School Programs

Public school programs are a common choice for many families with autistic children. These programs provide specialized classrooms, individualized education plans (IEPs), and services such as speech therapy, occupational therapy, and social skills training. The availability and quality of public school programs may vary depending on the location and resources of the school district.

Public schools typically have special education departments that are equipped to support the needs of autistic students. Teachers and staff receive training to effectively work with autistic children and implement strategies to help them succeed academically and socially. Public school programs often provide a structured learning environment that promotes skill development and independence.

Private School Programs

Private school programs specifically designed for autistic students offer a structured and supportive environment with smaller class sizes, a higher staff-to-student ratio, and individualized education and therapeutic interventions. These programs often incorporate evidence-based teaching methods and therapies tailored to meet the specific needs of autistic students.

Private schools for autistic children provide a comprehensive approach to education and therapy. They focus on addressing academic, social, and behavioral challenges while fostering a supportive and inclusive community. The smaller class sizes allow for more individualized attention and tailored instruction, enabling students to progress at their own pace.

When considering the care options for an autistic child, it's important to evaluate the unique needs of the child and the resources available in your area. Each care option has its own advantages and considerations, so it's crucial to choose the one that aligns best with your child's needs and your family's preferences. For more information on financial assistance and other resources, you may refer to our article on financial assistance for autism.

Specialized Therapy Centers

For families seeking comprehensive support and interventions for their autistic children, specialized therapy centers play a vital role. These centers offer a range of therapies and treatments that are tailored to meet the unique needs of autistic individuals. Let's explore three commonly utilized therapies: Applied Behavior Analysis (ABA), Occupational Therapy, and Speech and Language Therapy.

Applied Behavior Analysis (ABA)

Applied Behavior Analysis (ABA) is an evidence-based approach commonly used in the treatment of Autism Spectrum Disorder (ASD). ABA therapy focuses on encouraging desired behaviors and reducing unwanted behaviors, following techniques and principles that are rooted in behavior analysis. It can improve a child's life skills, intellectual abilities, and social skills.

ABA therapy is often implemented in a one-on-one setting with a trained therapist who works with the child to develop individualized treatment plans. The therapy focuses on breaking down skills into smaller, manageable steps and reinforcing positive behaviors. Through consistent practice and positive reinforcement, children with ASD can make significant progress in areas such as communication, social interactions, and adaptive behavior.

Occupational Therapy

Occupational Therapy (OT) is another valuable therapy for autistic children. OT focuses on enhancing a child's ability to participate in everyday activities and develop skills necessary for independent living. Occupational therapists work with children to address challenges related to sensory processing, fine motor skills, self-care, and social skills.

By utilizing various therapeutic techniques, such as sensory integration therapy and play-based activities, occupational therapists help children build essential skills and improve their overall functioning. This may include activities that promote sensory regulation, coordination, self-help skills, and social interaction.

Speech and Language Therapy

Speech and Language Therapy (SLT) is crucial for children with autism who experience difficulties in communication and language development. Speech and language therapists work closely with autistic individuals to assess their communication abilities and develop personalized intervention strategies.

SLT aims to improve a child's speech production, language comprehension, expressive language skills, and social communication. Therapists may use a variety of techniques, including visual supports, augmentative and alternative communication (AAC) systems, and social skills training. The goal is to help individuals with ASD effectively communicate their needs, express themselves, and engage in meaningful social interactions.

It's important to note that therapy approaches may vary based on the child's age, individual needs, and treatment goals. Other therapy models, such as the Early Start Denver Model (ESDM), Pivotal Response Treatment (PRT), and Discrete Trial Training (DTT), may also be utilized depending on the child's specific requirements [4].

Specialized therapy centers provide a supportive and structured environment where autistic children can receive targeted interventions to enhance their development and overall well-being. These therapies, including ABA, occupational therapy, and speech and language therapy, offer valuable tools for improving communication, social interactions, and daily functioning. Parents and caregivers can work closely with these therapy centers to develop individualized treatment plans that cater to the unique needs of their autistic children.

Residential Care Facilities

When considering care options for an autistic child, residential care facilities provide a viable solution for families seeking round-the-clock support and a structured environment. Residential care facilities are designed to meet the needs of children with autism who require intensive support and supervision that may not be adequately provided at home or in other care settings.

Round-the-Clock Support

Residential care facilities offer round-the-clock care and supervision for autistic children. Highly trained staff members are available at all times to ensure the safety and well-being of the children. This constant support allows for immediate assistance in case of any medical or behavioral emergencies. The dedicated staff members are experienced in working with autistic individuals and are trained to provide the specialized care and attention that these children require.

Structured Environment

One of the key benefits of residential care facilities is the structured environment they provide. These facilities create a routine and structured schedule for the children, which can be particularly beneficial for those with autism. Consistency and predictability help individuals with autism thrive and feel more secure. The structured environment in residential care facilities often includes regular therapy sessions, educational activities, recreational opportunities, and social interactions with peers. This comprehensive approach helps children develop essential skills and promotes their overall development.

By enrolling an autistic child in a residential care facility, families can ensure that their child receives the intensive support and supervision they need in a structured and supportive environment. However, it's important to carefully consider all options and assess the specific needs of the child before making a decision. It may be helpful to consult with professionals and organizations specializing in autism care to determine the most appropriate care option for your child's unique requirements.

For families seeking financial assistance for autism-related services, there are various programs and organizations that may provide support. To explore available options, you can refer to our article on financial assistance for autism. Additionally, if you are interested in learning more about other care options and organizations that focus on autism, you can visit our article on which autism organizations are worth supporting?.

Remember, every child is unique, and finding the right care option for your autistic child requires careful consideration and research. Residential care facilities can be a valuable resource for families seeking intensive support and a structured environment for their child with autism.

Financial and Emotional Impact

When considering placing an autistic child into care, it is important to take into account the financial and emotional impact this decision may have on the family.

Financial Considerations

Raising an autistic child can have a substantial financial impact. The costs associated with providing necessary care and support can quickly add up. According to ABTABA, the annual cost of raising a child with autism can range from $17,000 to $26,000, with the total cost through the child's 18th birthday reaching around $1.4 million. Additionally, the lifetime cost of financially supporting someone on the autism spectrum is approximately $1.4 million, which increases to $2.3 million if the individual also has an intellectual challenge.

These financial concerns can significantly impact a family's budget and create a discrepancy between income and expenses. It is important for families to plan and understand these expenses to ensure their child receives the necessary care and resources. Seeking financial assistance through programs such as Supplemental Security Income (SSI) and Medicaid can help alleviate some of the financial burden and provide access to necessary healthcare services. To learn more about financial assistance options, visit our article on financial assistance for autism.

Parental Well-Being

The decision to place an autistic child into care can also have a significant emotional impact on parents. The stress and guilt associated with this decision should not be overlooked. It is normal for parents to experience a range of emotions, and seeking professional help and support is highly recommended.

Professional counselors or therapists can provide guidance in coping with the challenges of raising a child with autism and help identify resources and support groups for parents. These professionals can assist in managing the emotional impact of the decision, providing a safe space to express concerns and explore coping strategies. It is essential for parents to prioritize their own well-being throughout this process.

Remember, you are not alone. Many parents have faced similar decisions and emotions. Connecting with other parents of autistic children through support groups and online communities can provide a valuable network of understanding and empathy. Exploring resources and organizations that focus on autism can also offer guidance and assistance. To learn more about worthwhile autism organizations, visit our article on which autism organizations are worth supporting?.

Understanding the financial and emotional impact of placing an autistic child into care is crucial. It is important for families to carefully consider their circumstances, seek professional guidance, and explore available resources to ensure the well-being of both the child and the parents.